World Orphan Drug Congress USA 2020 August 24, 2020 - August 26, 2020 What is the World Orphan Drug Congress USA? Executive Director, Mypart, Center For Cancer Research, Co-Chair, Pediatric Gene Therapy And Medical Ethics Working Group, Assistant Professor Of Psychiatry, Icahn School Of Medicine, Director, Nationwide Health Information Network Division, U.S. Department of Health & Human Services, patient, patient advocate, senior staff nurse, Chief Medical Officer, Rare Disease Drug Development, Vice President Policy And Regulatory Affairs, Director, Center For Innovation And Bioinformatics, Global Safety Lead, Safety Physician, Oncology. If you wish to set up a meeting with us during the event please contact ERGOMED’s senior business development manager, Ines Medved ( ines.medved@ergomedplc.com). World Orphan Drug Congress USA 2021 25 - 27 August Gaylord National Harbor Hotel, Oxon Hill, Maryland August 24 - August 26 2020 - Maryland, USA World Orphan Drug Congress USA focusses on the most pressing challenges and opportunities to bring rare disease therapies to patients faster. The LIVE in-person event will take place on August 25-27, 2021 at the Gaylor National Harbor Hotel in National Harbor, Maryland.Â. Samantha Parker, Senior Vice President Chief Patient Access Officer, Lysogene Mathew Pletcher, Head of Rare Diseases, Roche Christeen Moburg, Senior … Bringing together a global gathering of 1,200 leaders in orphan drugs from 50 countries, World Orphan Drug Congress USA will feature over 135 presentations covering all aspects of orphan drug development and rare disease research. With a global community of thousands of rare disease executives, you can join and partner with us throughout the year to drive leads, educate the market and network with the industry. Being Europe’s largest Orphan Drug Congress, this event will provide a platform for you to showcase your thought leadership and expertise … Posted on August 11, 2020 8/11/20. Schedule a meeting with our team. Monday, August 24 - 10:55 11:45 am Keynote Panel: Patient involvement in drug development for rare diseases – … Schedule to meet with Catalent at World Orphan Drug Congress USA 2021. ADVANCED THERAPIES - CLINICAL DEVELOPMENT. Global trends in orphan drug development; Biotech commercial strategies; Big Pharma strategies Contact Us. The World Orphan Drug Congress USA 2021 is dedicated to the opportunities and challenges for commercialization and market potential for drugs to treat rare diseases.. As dedicated advocates of the rare disease … From 13th – 15th November you will have the opportunity to participate in a vibrant gathering with more than 90 high-level speakers and 450 participants – bringing together pharma, biotech, government, payers, and regulators! Panel complet à confirmer. Benefit Risk Management, Pharmacovigilance, Vice President, Clinical Outcomes Research And Evaluation, Senior Vice President Of Regulatory Affairs, Senior Vice President, Global Gene Therapy Business, Chief of the Division of Genomic Diagnostics, Assistant Vice President Of Patient Engagement And Program Strategy, Division Chief Of Genetics And Metabolism, Senior Director, Specialty Medicine Search, Evaluation And Global Business Development, Partnership to Improve Patient Care (PIPC), Strategic Implementation Manager, Global Data Sciences And Analytics, Deputy Clinical Director, Office Of The Clinical Director, National Human Genome Research, National Alliance of People with Rare Diseases - Bulgaria, National Institute for Health and Care Excellence, Chief Technology Strategy Officer at Catalent Biologics, Chair, Access Committee, National Society Of Genetic Counselors, Manager, Center For Rare Disease Therapy. World Orphan Drug Congress USA focuses on the most pressing challenges and opportunities to bring rare disease therapies to patients faster. Now in its 12th annual edition, the World Orphan Drug Congress Europe, together with the co-located Cell & Gene Therapy Congress, will continue to bring experts from … EVERSANA Sponsors the World Orphan Drug Congress USA. By using this website you understand and … Medical Advisor, Office of Orphan Products Development, Chief Executive Officer And Head Of Research, Vice President Of Communications And Patient Advocacy. 898 likes. The voice of rare disease patients in Europe The international voice of people living with rare diseases Bringing together patients, families and experts to share experiences in a moderated multi-language forum. We look forward to collaborating, … Join Pharmerit and OPEN Health at the World Orphan Drug Virtual Congress 2020 (August 24-27, 2020) as we present: Advanced Therapies Commercial: Tuesday, August 25 Succeeding with Star Wars Medicine: Translating the Science and Value of Gene Therapy to Key Stakeholders Gavin Jones, Director of Rare Disease, OPEN Health. We are delighted to invite all the participants over the globe to attend the 4 th World Congress on Rare Disease and Orphan Drugs, which will be held during August 19-20, 2020 … With a global community of thousands of rare disease executives, you can join and partner with us throughout the year to drive leads, educate the market and network with the industry. As the largest rare disease conference globally with over 1,500 attendees, we are excited to virtually gather leading industry, government and regulatory authorities, patient advocacy groups, payers, investors and solution providers to meet, … World Orphan Drug Congress USA 2021 25 - 27 August Gaylord National Harbor Hotel, Oxon Hill, Maryland Bringing together a global gathering of 1,500 leaders in orphan drugs from 50 countries, World Orphan Drug Congress USA will feature over 260 presentations covering all aspects of orphan drug … L'événement World Orphan Drug Congress 2018 a eu lieu le 06 - 08 novembre 2018 à Barcelona, Espagne . Bringing together a global gathering of 1,500 leaders in orphan drugs from 50 countries, World Orphan Drug Congress USA will feature over 260 presentations covering all aspects of orphan drug development and rare disease research. The 8th annual World Orphan Drug Congress is the marketplace for orphan drug professionals looking at the complete value chain of orphan drug development, from clinical development and R&D to corporate development and market access. The World Orphan Drug Congress USA has always remained up to date with the evolving rare disease landscape to become the largest and most global annual gathering of orphan drug stakeholders. This year will feature over 260 presentations covering all aspects of orphan drug development and rare disease research. The World Orphan Drug Congress USA is a place where innovation and expertise is showcased, solutions are found and learning is done. Stratégie, plaidoyer et partenariat pour l’industrie des médicaments orphelins World Orphan Drug Congress 2020 Panel: Optimiser les stratégies de développement clinique pour la thérapie génique. We have expanded the program to focus on cell and gene therapies for rare diseases as well as rare oncology. Thursday, August 27, 2020 12:30 PM 12:30 Google Calendar ICS “World Orphan Drug Congress USA focuses on the most pressing challenges and opportunities to bring rare disease therapies to patients faster.” Share Us. Chief, Division Of Pediatric Genetic Medicine, Department Of Pediatrics, Bridge The Gap Syngap Education And Research Foundation, Senior Managing Scientist, Practice Director, Biopharmaceutical/Pharmaceutical, Director Of Drug Evaluation And Research Center, Executive Vice President And General Manager, Head Of Technology And Data Innovation, Customer Value, Attending Physician, Investigator, Division Of Genetics And Genomics, Principal Investigator, Associate Professor, Lead Scientist, Rare Disease Research. World Orphan Drug Congress USA focusses on the most pressing challenges and opportunities to bring rare disease therapies to patients faster. De portée international, cet événement s’adresse principalement au grand public. Consultant Paediatric Neurologist, President, European Paediatric Neurology Society, Royal Hospital for Children. Date: August 25-27, 2021 Location: Gaylord National Harbor Hotel, Oxon Hill, Maryland . 900 likes. World Orphan Drug Congress USA focuses on the most pressing challenges and opportunities to bring rare disease therapies to patients faster. World Orphan Drugs Congress, New York, New York. World Orphan Drug Congress USA focuses on the most pressing challenges and opportunities to bring rare disease therapies to patients faster. World Orphan Drugs Congress, New York, New York. Click Here to View the Event Website. World Orphan Drug Congress USA focuses on the most pressing challenges and opportunities to bring rare disease therapies to patients faster. World Orphan Drug Congress USA focuses on the most pressing challenges and opportunities to … World Orphan Drug Congress 24 - 27 August 2020, Virtual Conference World Orphan Drug Congress USA focuses on the most pressing challenges and opportunities to bring rare … World Orphan Drug Congress USA LIVE. Senior Research Associate, Division Of Medical Ethics, Senior Director, Pharmacy And Clinical Services, Director Of Science And Regulatory Affairs, Founding President And Chief Executive Officer, Head Of Center For Health Economics And Health Technology Assessment, Republican Center for Health Development, Kazakhstan, Head Of Quality Control And Analytical Sciences, Global Strategic Program Manager â Health & Life Science, Senior Director, Translational Medicine, Head of Rare Diseases, Program Officer, Office of Rare Diseases Research, Actelion - A Janssen Pharmaceutical Company of Johnson&Johnson, Vice President And Chief Statistical Scientist, Executive Director Of Clinical Research And Biology, Fellow, World Economic Forum, Precision Medicine Portfolio, Principal Strategic Consultant, Executive Vice President, Chief Research Officer, Vice President Of Business Development and Manufacturing, Rare Disease Epidemiology Lead Strategist, Vice President of Medical and Scientific Strategy, Head, Healthâs Rare Disease Consortium, Executive Vice President, Chief Commercial Officer, Associate Director, Center for Orphan Drugs Research, University of Minnesota, Director of Research Programs, Chief Business Officer And Executive Vice President, Managing Partner, Atheneos Ventures And Chief Executive Officer, Vice President Of Health Strategy And Innovation, Corporate Vice President and WW Head, Real-World Evidence, Associate Director Of Research Operations Undiagnosed Diseases Network Coordinating Center, Chief Executive Officer And Managing Director, Director Health Technology Assessment And Outcomes Research, Chairman and Chief Executive Officer, Chairman, BIO, Principal Investigator at Childrenâs National Health System, Professor of Radiology, Pediatrics and Biomedical Engineering, Director, Therapeutic Development Branch, Division Of Pre-Clinical Innovation, National Center for Advancing Translational Sciences - NCATS, Fibromuscular Dysplasia Society of America, Director, Center For Biologics Evaluation And Research (CBER), Director, Office Of Orphan Products Development, Food And Drug Administration, Vice President, Regulatory, Parexel Consulting, Oxford University Structural Genomics Consortium, Head Of Patient Partnership, Engagement And Oncology, Alliance for Artificial Intelligence in Healthcare, Co-Founder, President And Chief Scientific Officer, Machine Learning Expert At Novartis, Lecturer At Dublin Business School, National Alliance for Rare Diseases Support - Malta, Head Of Development, Federal State Budgetary Institution, The Center For Healthcare Quality Assessme, European Confederation of Pharmaceutical Entrepreneurs (Belgium), VP, Regulatory Affairs & Program Management, Senior Vice President and General Manager, Head Of Us Commercial, Director, Medical Affairs & Principal Med, Vice President Of Business Unit Lead, Rare Disease, Patient And Health Impact, Director, Office Of Rare Diseases Research, National Center For Advancing Translational Sciences - Ncats. EVERSANA was a proud sponsor of the 2020 virtual edition of World Orphan Drug Congress USA. Live event: August 25th - 27th, 2021 Gaylord National Harbor Hotel, Oxon Hill, Maryland USA. Our wonderful readers now have the chance to win a FULL ACCESS ticket for the annual World Orphan Drug Congress, in Barcelona, Spain! We will be running a virtual event consisting of panels and interviews which will take place on April 28, 2021. Expert Content; Subscribe; Investors; Careers; Contact Us ; Site Map; Follow Us. World Orphan Drug Congress USA focusses on the most pressing challenges and opportunities … Afficher la présentation originale (en anglais) Bloomberg the Company & Its Products The Company & its Products Bloomberg Terminal Demo Request Bloomberg Anywhere Remote Login Bloomberg Anywhere Login Bloomberg Customer Support Customer Support The World Orphan Drug Congress USA 2021 covers topics such as:. ERGOMED representatives will attend World Orphan Drug Congress from 15 th November till the 17 th November 2016 in Brussels, Belgium.. We are enabling pharma, biotechs, governments, payers, patient advocates and more to discuss new ideas and developments, with exclusive content across both our digital and live platforms in 2021. The 7th annual World Orphan Drug Congress is the marketplace for orphan drug … Get your product or solution in front of the leaders in the rare disease industry â from pharma, biotechs, governments, payers, investors and patient/patient advocates. Bringing together a global gathering of 1,500 leaders in orphan drugs from 50 countries, World Orphan Drug Congress USA will feature over 260 presentations covering all aspects of orphan drug development and rare disease research. World Orphan Drug Congress USA 2021. Come and speak with our experts during t he World Orphan Drug Congress US in National Harbor, MD. The LIVE in-person event will take place on World Orphan Drug Congress Europe. The 10th annual World Orphan Drug Congress USA will bring together rare disease stakeholders virtually in August, 2020. August 24th-26th, 2020 Oxon Hill, Maryland. The World Orphan Drug Congress is an award-winning event with an exhibition that has grown to become the largest and most established orphan drugs & rare diseases meeting of its kind across the globe. Strategy, advocacy and partnering for the Orphan Drug industry US Vyndaqel Medical Team Lead, Rare Disease, Chief Technology And Manufacturing Officer, Executive Vice President, Medical And Scientific Affairs, Vice President Of Value And Evidence Strategy, National Evidence-based Healthcare Collaborating Agency, Director, Rare, Orphan and Pediatric Diseases, Head Of The Directorate Reimbursement Of Medicines And Pharmaceutical Policy, Director, National Center For Advancing Translational Sciences (Ncats), Senior Director, Access Value And Evidence Strategy, Head Of International Business, Commercial Operations, Group Vice President And Life Sciences Practice Leader, Chief Operating Officer, Genetx Biotherapeutics, Chief Science Officer, Foundation for Angelman Syndrome Therapeutics, Vice President, Global Health Policy And Government Affair, Senior Vice President Technical Operations, Executive Vice President And Chief Medical Officer, Head Of Business Development, Rare Diseases & Rare Blood Disorders, Global Business Development & Licensing, Program Director, National Center For Advancing Translational Sciences - Ncats, Vice President, Rare Disease Commercial Development, Scientific Director Of Centre For Computational Medicine, Director, Office Of Tissues And Advanced Therapies, Cber, Group Vice President, Commercial Operations North America, Mechanism of Coordinated Access to orphan medicinal products (MoCA), EpidStrategies, A Division of ToxStrategies, Senior Vice President Of Research And Development, Executive Director, Global Head Epidemiology, Executive Director and Lead, Real-World Evidence/Data Analytics Center of Excellence, Founder, Professor and Director Of Translational Proteomics At The Montreal Clinical Research Institute, Head, Rare Diseases Therapeutic Area Unit, Vice President, Health Economics And Outcomes Research, Senior Director, Research And Development, Strategy And Alliance Management, National Organization for Rare Disorders (NORD), Vice President Of Real World Evidence Strategy. Global Patient & Scientific Affairs, Chief Medical Office, Vice President, Head of the Digital Research Network, Associate Clinical Professor Of Medicine, Rutgers Rwj Medical School, Executive Medical Director Population Health And Transform, Horizon Blue Cross Blue Shield - New Jersey, Head Of Medical Writing And Pharmacovigilance, Executive Director Of The Institute For Clinical Effectiveness And Health Policy (Iecs), Director Of The Health Technology, Vice President, Head Of Global Cell And Gene Technical Development And Manufacturing, Senior Associate Scientist And Section Head, Vice President, Data Sciences, Genomics, And Bioinformatics, Vice President Patient Diagnosis Programs And U.S. Field Medical Engagement, Director, Common Drug Review And Optimal Use, Vice President, Strategic Alliances And Licensing, Vice President, Accelerated Development & Patient Engagement, Director Government Affairs And Public Policy, Senior Director, Epidemiology Worldwide Safety And Regulatory. World Orphan Drug Congress US August 24 th - August 26 th, 2020 9:00am | National Harbor, MD| Booth #711. Come Visit Us at World Orphan Drug Congress US. This year’s event featured over 260 presentations covering all aspects of orphan drug development and rare disease research. Bringing together a global gathering of 1,200 leaders in orphan drugs from 50 countries, World Orphan Drug Congress USA will feature over 135 presentations covering all … PANEL: Wednesday, August 26 Bridging the … World Orphan Drug Congress USA 2021 25 - 27 August Gaylord National Harbor Hotel, Oxon Hill, Maryland We will be exhibiting at booth #711. The World Orphan Drug Congress USA is a digital media and events platform for the rare disease community. 250 likes. 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